Travel Tips for Caregivers of Dementia Patients

CHICAGO—With a record-breaking number of Americans projected to travel this Memorial Day weekend—an estimated 45.1 million traveling at least 50 miles from home between May 22 and May 26, according to American Automobile Association (AAA)—the Alzheimer’s Foundation of America (AFA) provided T.R.I.P. tips to families traveling with a loved one who has dementia.

“Traveling during Memorial Day weekend can still be enjoyable for families affected by dementia, but adaptations may need to be made as the disease progresses,” said Jennifer Reeder, AFA’s senior director of educational and social services. “Regardless of how far you’re traveling, taking a few simple steps in advance can go a long way to making the trip less stressful and more enjoyable for everyone.” 

Caregivers should consider the following T.R.I.P. tips:

Time the travel properly. Plan both the travel mode and the timing of your trip so that it causes the least amount of anxiety and stress for your loved one. Incorporate the person’s capabilities and needs when deciding on arrangements. Anything unfamiliar, such as a place, environment or change in schedule can be overwhelming for someone with dementia. As much as possible, preserve the person’s routine and support them through changes.

Reduce stress and anxiety. If traveling by mass transit, familiarize the person beforehand, in keeping with their understanding, with what will happen at security checkpoints, as this can reduce potential anxiety. If flying, request early boarding and TSA Cares assistance. The Transportation Security Administration (TSA) offers assistance with the screening process to air travelers with certain medical conditions, including dementia-related illnesses; contact their TSA Cares Helpline at least 72 hours prior to your flight to learn more. Advise the airline that you are traveling with someone who has dementia and let them know about any special needs your loved one has.

Include breaks and downtime. Scheduling many activities and experiences during a trip can be tempting but might overstimulate someone living with dementia. This could potentially cause confusion, agitation or anxiety. Build in downtime to allow the person to rest and recharge. Focus on spending quality time together rather than on the number of sites, attractions and activities. Take regular breaks on road trips for food, bathroom visits and rest, and try to avoid rush hour.

Plan for contingencies. Bring snacks, water, activities and comfort items (i.e., a blanket or the person’s favorite sweater), as well as an extra set of comfortable and weather-appropriate clothing. Be sure to take important health and legal-related documentation, a list of current medications and physician information with you.

Families and friends with questions about traveling with someone who has a dementia-related illness can speak with a licensed social worker through the AFA Helpline by phone (866) 232-8484, text message (646) 586-5283 or webchat alzfdn.org. The Helpline is available seven days a week.